Today in my heart a vague trembling of stars and all roses are as white as my pain…

mum2

“Hello Mum…” i say

from closed throat
as i choke on tears
of the inevitable.

she is slumped
on one side.
three pillows.
three pillows hold you
and support you as
you gaze through me
with eyes dim
and full of antipsychotic
medicine.
“medicine”
medicine that has taken
my Mother and held her hostage.
it seems dark in here, in there.
there is precious little light
here now…
and it is fading fast.

i wipe the tears from my eyes
and the drool from her chin.
‘medicine’ they say.

her hands, the skin – so soft, flaccid
and thin
like tracing paper
delicate like a trace
of life… where is that spark?

where is that fire?
that spirit?
that beautiful soul?
where is my hero –
where is she?
where did she go?

“oh Mum…” i say
and hold her hand, tight.
i don’t want to let go.

“Mum? Can you hear me?”
i know you’re in there, somewhere…
do you hear me?
do you hear me, crying in the night for you
like i did, as a child,
when the monsters would come
into my dreams.
i need you, Mother.
i need you – but i can’t find you.
i can see you but
you are no longer here,
in my world.
where are you?
where did you go?
i have so many questions, Mother.
so many questions…

“Let me sing to you…” i say, choking
on dread.
i can barely breathe. gravity is
crushing and caving my chest.

i can see you, but
you’re not there.
do you hear me?
please, come back to me.
do you want to come back?
is it better where you are?
away from the grieving for the lost one;
away from the pain and prison of illness
and isolation;
away from the four walls that house you;
away from the loneliness of not hearing
or remembering…
“Oh Mum…” i say
“come back to me…”

come back to this world
where we wait…
where we, your flesh and blood, wait
for you to return.
but…
looking into your eyes, i can tell
that you are
not coming
back…
are you?

Oh Mother.
you are unaware of how my mind
tortures my heart
as i think of you,
now a prisoner of the bones
and flesh that house you…
… and your smile.

i watch you smile at me,
your mouth quivering,
frail… failing.
i think of your voice and
how you loved to sing.
is there music where you are?
because you love music and
you love to
sing…
sing for me, Mother.
sing a song for me
to comfort me –
just like you did when
i was a child.
sing out loud so i know you are there…
so i can follow your voice…
so i can find you.
i know you are in there… somewhere.

where did you go?
you left so quickly.
your eyes are shadows.
your eyes, once teeming with light,
now tired.
tired of seeing.
tired of seeing this
broken slideshow of your life.
do you see me?

do you think of me,
your youngest child.
your youngest daughter.
do you remember my laugh;
my face;
my name?

where are you, Mother?
i wish you could return
so we could take a walk
through the woods
and talk, like
we used to.
where are you, Mother?
i wish you could return
and brush my hair and
you could tell me all about where
you have been… and
what it’s like there.

because…

“i miss you, Mum…”

i seek a moment’s comfort
in knowing in your fugue
state of mind
that you are, perhaps, blissfully
unaware of
what this world has become
without you.

and yet… i am full of fear:
fear of knowing that this is the end;
fear of knowing that you are alone… there;
fear of knowing you are struggling, perhaps,
to return… clutching thoughts
with only fragments of this
and that
and this reality; with only
broken
and dis-
jointed memories and
not knowing
what
is
real.

are you lost?
or are you rambling through
the forest of your mind?
lost in that deep, dark forest.
do you know where you are?
or are you lost – in a manic
panic –
desperately searching
for a way
to come
back.

if you could, would you find your
way back
to me?
to us?
to the world you have left behind?
or…

are you happier in this sedative dream?

what is it like there, Mother?

sleep does not come easy to me these days.
i lie awake, listening to the sea and
think of you, drowning… choking… fighting
for breath… searching
for the familiar… a lifeline… to
fight against the black water
and return to us.

Oh Mother. what am i to do?
what am i to do, without you?
i am not yet ready to be an orphan.
sure, i am a grown woman
but you are my mother.
you gave me life
and now i look
towards the end
of yours.

Oh Mother.
are you too far gone?
somewhere… in that frail
and useless body
i know you exist.
i know you are in there…
but…
i can’t get to you.
i hope you can hear me?
hear my thoughts?

i hope you can hear me, Mother
as i have not abandoned you.
i am right here.

i worry that in this pergatory
you can see us… see our tears.

“why is it so dark in here?”

is it dark where you are, Mother?
is it?
i wish i could let some light in.

i wish i could just…
i wish…
i…

if you find light in your darkness, Mother,
don’t be afraid.
i have not abandoned you.
i am right here.
i will always be right here.
i hope you find some light
in your forest…
“it’s a beautiful day today, Mum”
“the sun is shining…”

what is that sound?
oh it’s my own voice.

(c) Kat McDonald 2017

img_2083

– watching someone you love be consumed with dementia is heart-wrenching… especially so when that someone is your mother… the one who gave you life and light and love.
it’s hard to watch your world become slowly starved of that light as her life slips from her, and you, with certainty of lengthening shadows and loss, can do nothing but wait.

and that weight is unbearable.

today, my heart was broken… more than i ever thought possible.  my Mother had not been allowed any visitors for almost a week as she, sadly, had to be sectioned for her own safety.  today was the first of me seeing her in a little over a week.  the change was, inevitably, a huge departure from the soul i last saw.  she is fading fast, like roses.

mum

my mother, aged 15

mum3

my mother, a keen photographer it would seem…

mum1

my  mother, on her wedding day…

mum4

my mother, with my lost brother, William, who died 10 weeks before i was born. he was 18.

Title borrowed from one of my other heroes… Federico Garcia Lorca:

Autumn Song
November 1918

[translated by DK Fennell]

Today I sense in my heart
a vague tremor of stars,
but I lost my way
in the midst of fog.
The light trims my wings
and the pang of my gloom
will moisten the memories
at the font of knowledge.

All roses are white,
as white as my sorrow,
but the roses are not white
that have snow on them.
Once they dressed in a rainbow.
Besides there’s snow on my soul.
The snow of my soul is
kissed by flakes and scenes
which disappear in shadow
or in light when thought of.

The snow falls from the roses,
but the soul’s remains,
and the grapple of the years
makes a shroud of it.

Will the snow melt
when death takes us?
Or will there then be other snow
and other roses more perfect?
Will there be peace among us
as Christ teaches us?
Or will there never be
a solution to this question?

And if love cheats us?
Who will resurrect us
if twilight buries us
in the scientific truth
of Good, which perhaps doesn’t exist,
and Evil which flutters nearby.

What if hope gives way
and Babel ensues,
what torch will light
the roads on Earth?

If the blue sky is a fantasy,
what will become of innocence?
What will become of the heart
if Love has no arrows?

And if death is death,
what will become of poets?
and things in a cocoon
which no one remembers?
Oh sun of hopes!
Clear water! New moon!
Dull souls of stones!
Today I sense in my heart
a vague tremor of stars
and all roses are
as white as my sorrow.

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10 thoughts on “Today in my heart a vague trembling of stars and all roses are as white as my pain…

  1. I cried as I read this as it reminded me of my own heart wrenching journey with my dear mum, who I lost six months ago. I understand your anguish but hold on tight to your memories of your mother. That’s what matters. Wishing you strength and peace. xo

    Liked by 1 person

  2. Wow. I am speechless. This is so heartbreaking and brings memories of my Granny Peggy. Stay strong as deep inside she knows your there for her as she was for you. Please give her a huge hug from us all Kat xx

    Liked by 1 person

    • thank you, Mandy xx. thank you for your reply. it means a lot to me. I remember Peggy. she was a wonderful warm soul. much love to you. let’s catch up next time you are over xx. I’d like that.

      Like

  3. You are not alone. My grandpa has dementia and he is struggling to fight to be here with us. My mom and I, take care of him at home. I know how you feel, its sad, and heartbreaking.

    I cried while reading this and I’m still crying because its so hard to see someone with dementia. 😦

    Liked by 1 person

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